just Debra: Faith in the Midst of Change: Navigating Dementia Care with Grace

Faith in the Midst of Change: Navigating Dementia Care with Grace

By Rayna Neises, ACC

Watching someone you love live with brain changes like Alzheimer’s Disease is heartbreaking. I can't say caregiving for dementia is harder than other types because I've lost both of my parents to this disease, and therefore it is my only reference. Brain change is not only a medical condition, but also a life-changing experience that impacts both the individual and their caregivers. I'm grateful that my deep faith has been grounding and empowering during my caregiving seasons.

The Role of Faith in Understanding and Acceptance

Understanding Beyond Science: Faith is important in caregiving for people with brain changes or dementia. It offers understanding that goes beyond medical knowledge, bringing comfort and strength in uncertain situations. It offers a unique form of understanding that goes beyond what medical knowledge can provide, serving as a source of comfort and strength in the face of uncertainty and the unknown.

When we lean on faith, we're reminded that there's a greater plan and purpose beyond our immediate challenges and struggles. Faith helps us to see beyond the physical and cognitive declines associated with conditions like dementia, allowing us to connect with the person on a spiritual level. This spiritual connection reinforces the idea that the essence of the individual—their soul—is intact, regardless of the changes happening in their brain.

Moreover, faith instills a sense of hope and resilience. It encourages caregivers to trust God, providing a sense of peace and acceptance even in difficult circumstances. This peace, as described in Philippians 4:7, "which surpasses all understanding," doesn't negate the reality of the situation or the challenges faced. Instead, it offers a form of solace that helps caregivers navigate their journey with grace, knowing they're not alone.

In essence, faith acts as a beacon of light in the often unpredictable and dark journey of dementia care. It offers a perspective that elevates the caregiving experience from one of mere duty to one of ministry and service, grounded in love and compassion. This deeper understanding, rooted in faith, empowers caregivers to face each day with renewed strength and purpose, making the journey a testament to the enduring power of love and faith amidst adversity.

The Power of Prayer in Caregiving

A Two-Way Conversation: Prayer was a cornerstone of my caregiving experiences. Petitioning God for what we need is important, but it is not just asking for help or healing it is a conversation. 1 Thessalonians 5:16-18 - Encourages continual prayer as a means to rejoice always and give thanks in all circumstances, recognizing this as God's will. There can be extraordinary joy even while you are experiencing heartbreak. Prayer encapsulates the expressions of all of ourselves - heart, mind, soul and spirit. But remember to take time to listen. Sitting quietly during and after our prayers allows space to hear the still small voice of the Lord. Don’t rush off; He will give you peace and wisdom when lingering with Him listening for Him.

Hope and Eternal Perspective

Beyond the Here and Now: Faith offers a beacon of hope in the often-difficult journey of dementia care. It reassures us that our struggles are not in vain and that there is a purpose and a plan beyond our current understanding. This hope is not just for the present moment but extends into eternity, offering a profound sense of peace and comfort amidst the challenges.

While caregiving, faith provides the strength to continue loving and serving, even when the journey becomes particularly difficult. It reminds us that our labor of love is seen and valued, not just by those we care for but also by God. This recognition can be incredibly affirming and sustaining.

For those experiencing brain change, faith can be a source of comfort too. Even if their cognitive abilities decline, the spiritual essence of a person remains. Engaging in spiritual practices, listening to familiar hymns, or simply being in a faith-filled environment can bring moments of peace and joy. Some of my favorite memories are of taking my dad to church and listening again to his strong voice as he sang praises to God.

Ultimately, faith offers a perspective that looks beyond the temporal to the eternal. It reminds me that while dementia may impact memory and cognition, it cannot touch the soul. 2 Corinthians 4:18 encourages us to "fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal." This eternal perspective can bring immense comfort to both caregivers and those in their care, providing a sense of hope and peace that transcends the challenges of the present.

Embracing the beacon of light and hope which faith provides can be one of the most important companions during your caregiving season. Leaning into faith, seeking support from your faith community, and holding onto hope as you care for loved ones experiencing brain change or dementia can sustain you even in this hardest of seasons.

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